News
Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million in Prime Medicine to continue ...
I’ve struggled with my mental health for as long as I can remember, but being diagnosed with bipolar disorder the summer after starting Trikafta made me question how the medication may have affected ...
My son was diagnosed with CF in 1965 and bravely defied the odds, living 28 cherished years. Then, decades later, I was stunned to receive a CF diagnosis of my own.
Dear Chair McInnis, Chair Craven, and Members of the Committee on Finance, On behalf of the over 1100 people with cystic fibrosis in North Carolina we write to express our support for HB 67, which ...
In a letter to Senate leadership, the Cystic Fibrosis Foundation joined the Partnership to Protect Coverage in urging Senators to oppose the proposed Senate amendments to H.R. 1 unless changes are ...
Trikafta has transformed my life in ways I never thought possible. But with that came a sharp awareness of those still waiting for a treatment that works for them. That’s why I’m deeply committed to ...
Even though Trikafta saved my life, I am still dealing with the emotional trauma of being so close to death and missing the person I was before I got so sick.
The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
Food insecurity is a widespread problem that also touches the cystic fibrosis community. I should know — I have experienced it myself and had to accept government assistance to buy food.
After I was told to stick with sprints because my cystic fibrosis would make it hard to become a distance runner, I was determined to prove that this disease won’t hold me back from my goals.
Some results have been hidden because they may be inaccessible to you
Show inaccessible results